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Shelby er hele vores verden! Vi havde ingen idé om, at noget ville være "anderledes" ved hende under graviditeten, men jeg arbejder og leveret på et FANTASTISK hospital (OSF Saint Francis Medical Center i Peoria IL, for nylig udnævnt til bedste NICU i landet!), Og vi var heldige nok at have fundet ud af meget tidligt! Hun blev diagnosticeret med PKS ved 12 dage gammel, hvilket er MEGET tidligt i PKS-verdenen! Shelby var i NICU i 12 dage, fordi hun havde en kløft i ganen og en anus anbragt anterior. På dag 5 blev hun opereret for at korrigere hendes anus, og hendes gane blev repareret efter 12 måneder.

Hun er en meget smidig, glad, højlydt baby! Hun er forsinket mentalt og fysisk, men gør store fremskridt ved hjælp af ergoterapi og fysioterapi. Vi har Masser af aftaler med MEGET forskellige læger, men vi har indtil videre kun haft vidunderlige oplevelser med dem alle. Vi har haft problemer med tilbagevendende øre- og lungeinfektioner. Men det eneste, der er tilbage at gøre nu, er at elske hende alt, hvad vi kan, og give hende ALT, vi kan. Hun gør vores liv komplette, og vi ved ikke, hvad vi skal gøre uden hende nu!

Jeg prøver aldrig at fokusere på hvad Shelby ikke kan, men i stedet hvad hun kan. Og hvad hun kan gøre er at bringe en glæde i mit liv, som jeg aldrig har kendt!