Conor

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Hej allesammen,
Jeg vil gerne introducere jer alle til min søn conor. conor er næsten 3 år gammel. født 2007. Han er en meget glad lille dreng og er altid fuld af smil.
da jeg var gravid med conor, gik alt godt, indtil jeg fik min scanning, og det viste, at jeg havde polyhydramneøs (overskydende væske omkring babyen). på dette tidspunkt vidste jeg ikke, at der var noget galt. Jeg gik i arbejde 5 uger tidligt og conor vejede med 10 kg 10 ounce. hvilket var virkelig stort. læger kom til mig den aften og fortalte mig, at de bemærkede, at conor havde dysmorpiske træk, og i starten troede de, at det var Downs syndrom, som de naturligvis havde forkert!
conor havde fodringsproblemer fra det tidspunkt, han blev født, havde han problemer med at suge. 3 uger senere blev han sluppet hjem, da han begyndte at drikke af flasker. conor havde problemer med hofterne og måtte bære en bækkenbund i et par måneder. dette blev rettet .conor blev til sidst diagnosticeret med PKS 14 måneder gammel, og det var et chok, men en lettelse på samme tid, at vi endelig havde et navn på, hvad han havde. conor led en masse brystinfektioner det første år, og han havde en videoflueroskopi, der viste, at hans mælk gik ind i lungerne, og det var dette, der forårsagede hans problemer. så han fik indsat et næseslange hver 5. dag. Jeg blev uddannet til at indsætte dette, og det var svært, men det skulle gøres. dette fortsatte i 6 til 8 måneder. conor har nu PEG-rør, og siden han fik dette indsat, har han kun haft få infektioner i brystet.
conor har briller og har fået testet sin hørelse, hans hørelse er kun lidt påvirket. så han kan høre os. conor er forsinket udviklingsmæssigt, men han bliver bedre efterhånden som ugerne går. han sidder i 4 til 5 minutter og laver flere lyde vokalt.

conor er en glad lille dreng, og vi elsker ham til små stykker og ville ikke ændre ham for verden !!!!!!

af Elaine Murphy, conors mammy.