Gabby

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Gabby er en engel sendt fra Gud - vi havde ingen idé om, at noget var anderledes med hende under graviditeten. Alle test var normale. Derefter kom 15. juli 2006. ved ankomsten til 04:58, hun så godt ud. Alt der var galt var, at hun havde rigtig dårlige klubben, vi troede, det var hendes eneste problem. Da Gabby var 6 timer gammel, bragte de hende til mig, så jeg kunne fodre hende, så blev hun blå og holdt op med at trække vejret. Så de skyndte hende til NICU i 6 dage - løb alle mulige test - alt var normalt, så vi tog vores lille engel hjem. Et par uger senere bemærkede jeg, at Gabby ikke voksede eller spiste meget godt, så jeg tog hende til lægen. Han sagde, at hun havde det godt, så derhjemme gik vi - der gik et par uger, og jeg kunne fortælle, at noget bare ikke var rigtigt. Jeg har 3 andre børn, så Gabby var min fjerde. En mor ved det. Jeg tog hende til endnu en læge. Så snart denne læge så hende, sagde han, at hun havde et genetisk syndrom, så han sendte os til Baptist Hospital i North Carolina. Lægerne der vidste, at hun havde noget, men vidste ikke, hvad hun havde. På dette tidspunkt var Gabby 3 måneder gammel og vejede 6 kg. Lægerne begyndte at køre tests, og alle tests kom tilbage normale. På det tidspunkt vidste vi ikke, hvad vi skulle tænke, men fortsatte med at teste for alle slags syndromer. Vi gik til 3 forskellige hospitaler i North Carolina, men ingen kunne fortælle os noget. I en alder af 4 måneder måtte hun have sat i et nasogastrisk rør, i en alder af 7 måneder havde hun en gastrostomi, og hun har stadig den dag i dag. Gabby har pigmentering over hele kroppen, klubben, øreplader og en ekstra brystvorte. Gabby har fået arbejds- og fysioterapi lige siden hun var 3 måneder gammel. Da Gabby var 2 år fortalte de os, at hun aldrig ville gå. Det var svært at acceptere, men det gjorde vi. Da Gabby var 3 år, begyndte hun at få anfald, til tider virkelige dårlige - ind og ud af hospitalet hele tiden - tog alle mulige lægemidler og stadig til i dag 2 år senere er de stadig meget dårlige. Gabby blev endelig diagnosticeret med 8. december 2009 med PKS. Det var den sværeste dag nogensinde for os. Vi gik hjem, kom ind på hjemmesiden og begyndte at lede efter og søge efter en slags svar. Vi kiggede på alle de smukke børn og følte os godt, vi var ikke den eneste derude, der gennemgik dette. I juni 2010 tog vi til New Jersey for at møde alle PKS-familierne - det var den bedste tur, vi nogensinde har taget. Børnene var alle små engle, og familierne til de små var så hjælpsomme - kan ikke vente med at gå igen i 2012! I dag er Gabby 5 år gammel og gør det godt. Hun måtte have en trach i 5. november 2010. Vi har sygeplejepleje nu for hende, som har hjulpet bunker. Gabby er stadig meget forsinket - hun går ikke, eller hun kan heller ikke tale, men det er OK - jeg ville ikke ændre noget ved hende. Jeg ser på børn Gabbys alder, og det er svært at se på dem til tider, men jeg siger til mig selv, at Gud valgte at få et barn som Gabby og tage sig af hende --- Gud gjorde hende sådan af en grund. Så længe jeg kan kramme hende, kysse hende, give al den kærlighed jeg kan, er hun en meget glad lille pige.